Living with beta-thalassemia takes days off the calendar. It always happens when you live with an illness, but now for thalassemia patients there are very specific numbers that show everyone the harsh truth: transfusions and visits on average take up 3 days a month, 36 in a year. There are many, especially for young people who feel robbed of the possibility of fully living even those days ‘free’ from visits and transfusions.

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